Just Another Monday in Autism Land

I’ve had a real wake up call lately. I can’t go into the details as they involve personal business of my family members. However, I can tell you what stupor I woke up from. Though I wrote a book (Always Leave Them Laughing http://www.amazon.com/Always-Leave-Laughing-Valerie-Herskowitz-ebook/dp/B008MAGIWE/ref=sr_1_1?ie=UTF8&qid=1382400586&sr=8-1&keywords=always+leave+them+laughing that chronicles the life of a mom who has an adult son with autism and the need for her to develop a plan for her son’s future when she is no longer on the planet, and though last year I started working with a group of individuals who are like-minded on the concept of a residential community, I then proceeded to drop out of the group. Huh? What!??!! Well, that’s the truth. I can’t understand why I did that? I kind of went back into my shell of denial that is a false shell-in other words, it certainly doesn’t protect me at all. It’s a fragile shell at best. But then the wake up call. So back I went to the group where I was accepted with open arms even though I left them in the lurch. So now I am again possessed by the need to make this a realty. It HAS to happen. It will happen. Countless numbers of parents are also finally awaking and realizing the inevitable. It won’t happen overnight, but it will become a reality. Mariposa Village-you will arise from the ground! http://mariposavillage.org/

So Monday morning began as usual, but then, as usual picked up to a fevered pitch in no time. I know that I am over-committed. This is a recurring theme. Nothing new. But the truth is that I work well when I am super busy. Down time is not good for me. So I wrote a grant to Autism Speaks, twice! Note: Their website times you out without any notice and you lose all your work.
So I called to complain. I was told that my grant idea would have been denied anyway as it didn’t meet the project specifications. So I guess the universe timed me out-haha. I also used the time to complain (loudly) that Autism Speaks does nothing for the adults especially here in Florida. NOTHING!!  I was told about a town hall meeting. I guess another venue to complain. But I’m sick of the rhetoric. Really I am. I decided that I am going to keep complaining to everyone. There is really nothing for adults on the spectrum. I have to organize everything for Blake. Is that right? And we live in Palm Beach-a booming metropolis. And still no services here for adults. Did I mention nothing? So hopefully we will get the grant. Though, I’d be lying if I said I was optimistic. I wrote a grant for vocational services for adults on the spectrum last year and didn’t get the measly $5,000 that they give out for community grants. Well, I told them that I want to speak to the people in charge of appropriating the grants. I want to know exactly why they don’t do anything for the adults here. The woman said they would call me. I’ll check back with them in a week if I haven’t heard anything. Check back here if you want to know if they called.

So Debbie and I changed the entire grant focus, but we got it submitted in time. We want to organize community-based field trips for adults and adolescents on the spectrum. Not only will we be offering fun activities for these people, but it will also give us an opportunity to network and talk about Mariposa Village http://mariposavillage.org/

Next on the list-had to start the 40 bags of GFCF chocolate for an autism charter school that I promised would donate for the kids for Halloween. Blake had fun making the chocolate! http://thechocolatespectrum.com/

Blake is proud of his accomplishments

Blake is proud of his accomplishments

Then onto my work as the president of FLASHA (Florida Association of Speech Language Pathologists and Audiologists). Our Fall Conference starts THIS FRIDAY! Can’t wait. The focus for Friday is Auditory Processing Disorders. And Saturday-guess what we will be presenting on? Just guess. It has something to do with the title of this blog post. YES! YOU ARE CORRECT! AUTISM!! All day Saturday. Yay!! I am going to try and make some yummy autism chocolate to pass out.

The Chocolate Spectrum

The Chocolate Spectrum

 

Now my day job-college teaching and therapy stuff. I really didn’t mean to leave it for last, but…well, I guess I did! Oh well, got it done.

Blake and I have Weight Watcher Lemon Blueberry muffins to make for Lisa. And then there’s dinner that isn’t going to magically appear. I am leaving the worst job for last. How is it that I love to bake and make chocolate, but hate to cook dinner. Oh well. Not the end of the world. But it is the end of this post.